My Appointment With Infectious Disease AND My Results
I had my appointment with the Infectious Disease Specialist. It went exactly as I thought it would. The Specialist asked me what the problem was and asked that I give a bit of history. I tried as best I could to explain what I have been enduring for years now. This was very difficult indeed to get across how bad things have been for me. I first explained to him that I first noticed the symptoms around March 2003 and since then things just got worse and worse for me.
He then asked me some questions. He also asked if I’d been abroad. He then proceeded with, what felt like to me, a lecture on parasites. He explained the different types and how a person can pick them up.
After telling him what my symptoms were, and what I’ve been experiencing he told me, in his words, that nothing I had described made him think I had a worm problem. I was a bit taken aback by this. (I’ve done research on my symptoms and in my opinion and from what I am feeling it is parasite-related. When I first fell ill and began to research my symptoms I wrote to Humaworm who kindly wrote me back saying that my symptoms, in their opinion, were parasite related. It is why Humaworm was one of the first products I ever tried. I’ve also seen practitioners who have previously told me I have worms/parasites).
The Infectious Disease Specialist never really commented on what I had said with regards to my symptoms, he just wrote things down and asked me specific questions. For instance he asked if I’d been abroad, did I have swelling on any part of my body, like inflammation. I remember he asked me if I experienced pins and needles in my hands and feet. I remember saying no but I’ve wondered if the buzzing sensation I feel in my legs and feet could be a similarity because sometimes it does feel like pins and needles but to me, I’ve always described it more like buzzing sensations. He also asked me about some family history with regards to my parents. He talked about strongyloids but I can’t recall much about what he said apart from that these things are small and that he doubted I had this.
I did notice at the appointment he didn’t have the micrographs or notes I had given to my doctor in order to send on to the clinic. They may well have been in the folder he had on me but he certainly didn’t take them out or speak about them. This bothered me but I didn’t say anything. I had expected them to be on his desk and that he would comment on them. He did make one comment, not on my results, I felt it was a general comment about labs. His words were to the effect that a lot of these types of things that are found are just fibres. I was really taken aback by this because I have a micrograph showing a large nematode! And I’m supposed to think it’s a fibre! I remember leaving the appointment afterwards and driving home in tears wishing I’d asked to see the micrographs I had sent and asked to see the large nematode micrograph. I wish I’d asked him “you expect me to believe that this is a fibre"! I was very upset indeed.
I was very nervous at the appointment and I didn’t feel comfortable at all, not even to ask questions. His ‘problem’ comment (which I talk about later) made me feel very uneasy and I felt if I were to say anything it wouldn’t make any difference. That’s the impression I got early on in the appointment.
Whilst I was there the Specialist gave me a full examination. He felt all over my abdomen, feeling all over my tummy, he checked my back-passage, looked into my eyes with a torch deep into my eyes, looked at my tongue, checked my ears, checked my breasts, checked my reflexes, sounded my lungs asking me to take deep breaths in and out. He also sounded my heart. He did pick up something with my heart and said that there was a murmur. I told him about my hospital dash 2 years go where I experienced chest pain, pain in the arms and pain in the jaw (classic heart symptoms) but what he described as a heart murmur is not how I would describe it but nevertheless, that’s what he said. I told him I feel heavy wriggling around the heart and chest area and that I also experience pain too.
His exact words to me were - “I see a problem". I knew exactly where he was going with this. I interrupted him and I said I know what you are going to say. I told him he was going to say I was delusional and that it is all in my head. He replied, “I see you have done some research". I was a bit taken aback by this and of course I said yes I’d done research. I’ve been ill for so long, I’m not prepared to sit about and allow my health to deteriorate. I was very upset with his “I see a problem” remark. That’s basically what he was telling me, I was the problem, and that the parasite/worm problem was in my head. I did feel like not saying anything further and I didn’t say much after this. I felt quite helpless. I just hoped that the tests they were carrying out would come back positive with regards to worms but then they were only doing one blood test for toxicaris. Is that enough to enough conclude I don’t have a worm problem?
During the appointment, he sent me to a nurse who took blood from me. I wasn’t entirely sure what tests were being done, I felt it wasn’t explained to me very well. I believe some were just routine ie., kidney and liver function blood tests. The only worm test he would do was to check for the toxicaris worm. I was also asked to do stool samples (x 3). I also had a urea breath test to check for helicobacter bug as he was aware I had this bug a few years ago.
Here are my results -
Blood Tests -
All my blood tests came back negative, including serology test for toxicaris. Liver and kidney function were normal. I can’t remember the exact wording exactly but it was explained to me that my blood was ‘within the range’ when they checked my blood etc. I’m not sure exactly what this meant but ‘within the range’ must be ok.
Stool Tests -
Urea Breath Tests -
Positive. This was the only positive result I got. I have been advised to go back to my own doctor to receive a 2 week course of antibiotics to eradicate this bug. I will then have to go back after the course of antibiotics are finished to check that the bug has been eradicated. (I was diagnosed as having this bug years ago and I received antibiotics back then but perhaps it wasn’t eradicated in the first place).
I have to admit, I was very surprised to have urea breath test carried out. I was also surprised to have routine blood tests done with regards to liver and kidney function. I could have had this done through my own doctor, I’ve had this done before.
I was expecting negative results with regards to parasites/worms. I am aware that it can be difficult to diagnose and don’t I know it! So I wasn’t surprised at all. The Infectious Disease appointment is not an experience I would like to repeat. I found this extremely difficult explaining what I’ve been through. At the end of the day, for me, it’s been an uphill struggle trying to get someone to believe me. If their results are negative, what are they supposed to do? I believe it’s why they don’t believe me - the negative results. They do their tests, irrespective of what I’ve had done privately or what I have to show them. I know one thing’s for sure I’m not delusional and none of this is in my head. I take great exception to this.
The difference in how I viewed my doctor’s interpreation of my private results and the views of the Infectious Disease Specialist was very quite different.
My GP appeared to be impressed with the micrographs commenting on how ‘high powered’ they were. Words to that effect. After viewing the micrographs he didn’t appear to have a problem referring me. In fact, I believe the micrographs were the reason I was referred. Without them I don’t think I would have been referred. I’ve been going back and forth to my doctor for years with my symptoms so I believe it was my micrographs that made him refer me. As for the Specialist when I say ‘viewed’ them, he no doubt viewed them before my appointment but he certainly didn’t have them present when I was there at this appointment.
It was quite a contrast between the two doctors. And the Specialist told me I’d come to the right person, he knows all about worms. It was one of the first things he said to me when I entered the room. I beg to differ big time!
I’ve been advised to go back to my doctor to discuss the positive result with regards to the helicobacter bug. Perhaps I can discuss my Infectious Disease appointment with my own doctor then and see what he makes of it.
Even when I have been experiencing all of the debilatating symptoms for over a year! It's so difficult knowing who to turn to
I found it very upsetting, I cried all the way home.
The symptoms can be very debilitating. It's no life.
Finding someone who can help and understand can be difficult but not impossible.
Best of luck.
I'm not sure how to add rss feed. I'll try and get back to you.
You ask what the 'blog theme' is ? ?
(If you visit the home page it will explain things.)
You have made a comment at my blog. I am writing about my health and my experiences etc.
I am suffuring from similar symptoms like yourself. i am see the worm images in my eye and just recently seen a worm like thing you showed in your pics a white one in my stools and am seeing loads of white dots in my stools. I recently had a colonscopy done bout 6 months ago but dey were really looking for colitis but now i am satring to think is parasites, i feel ok the symptoms have only come about in the past year or two, but i still dont feel as stong as i used to, i am 23 years old and i dont know what to do am not sure what to do, iv tried to just get on with my life but i just dont feel quite rite. You said somthing RHR labs can you advise me on what to do plz that would be really helpfull. Thanks Mohiz
Thank you for your comment.
These things I see in my eyes, I'm not 100% sure what they are, I describe them like worms because that's what they look like. I do not believe they are floaters. Floaters apparently are harmless. I have suffered pain and redness (although I'm much better of late, and I've noticed the eye things reduce in numbers).
I too have had colonoscopy, and also endoscopy was carried out the same day. Nothing, other than the helicobacter pylori bug was found. I was treated for this. I've been to my GP numerous and countless times due to my symptoms. Quite recently I was diagnosed again with the helicobacter bug (after my visit with Infectious Disease doctor I had the test again and it came back positive). I was prescribed metronidazole along with amoxicillan to hopefully eradicate this bug. I have to be re-tested to check it has gone.
The tests I had carried out were by RHRPlus and I've posted the results here on my blog. I had sputum, urine and stool samples analysed. I write about them in my blog.
I will be updating my blog very soon.
I have taken Humaworm many times. What I liked about HW is that their herbs are fresh. HW even prepared extra strength formulas for me due to my infection and continuing symptoms.
I've tried many different products over the years. In the early years I felt a lot of products I took only suppressed my symptoms (even sometimes I felt no change whilst taking them) and even after I had finished a cleanse my symptoms remained just as bad or returned with a vengeance. It's only over time, a very long time, that with adding other herbs and persevering that I have notiched a big change.
For me, I believe it depends on how significant the infection is and how long it's been there. It takes time and for me, there was no easy fix. In my experience my symptoms never alleviated after just one cleanse, let alone a few cleanses.
Re HW, unfortunately they only ship to certain countries now. (You can check their website for shipping).
You say "Not exactly the answer I was looking for but some what helpful"
? I'm a bit perplexed by your quote.
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